
What does it mean to be ‘PwP-centric’ ?
In a – by now quite famous – TEDtalk clip on youtube, Professor Bas Bloem, a Neurologist and outspoken and long-standing advocate of a more
In a – by now quite famous – TEDtalk clip on youtube, Professor Bas Bloem, a Neurologist and outspoken and long-standing advocate of a more
We are unreservedly patient-centric in our approach … However, for that to work we also have to listen to Neurologists I recently drafted a white
What’s in it for you ? What motivates PwPs to contribute data What’s in it for you ? What motivates PwPs to contribute data What’s
If there is anything that really scares me about PD, it is the possibility that I might lose my ability to communicate …A few years
Margaret Hoehn and Melvin Yahr published their scale, which was used to measure the progression on Parkinson’s Disease, in the journal Neurology, in 1967. https://en.wikipedia.org/wiki/Hoehn_and_Yahr_scale
A worldwide pandemic tends to make you re-visit your priorities … When we first presented our People Like Me proposal for a secure and scalable
A study on Pain related to PD Observes in its introduction … And yet … patients seem to think it matters Pain was certainly high
I recently watched The Great Hack on Netflix … It is the story of how Cambridge Analytica ‘weaponised’ Facebook data and probably changed the outcome
Parkinson’s is diagnosed and progress monitored by means of ‘clinical observations‘ … Occasionally, as in the run-up to DBS, those observations are recorded on video.
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