Privacy Policy
Last updated November 21, 2023
NEUROPATH SOLUTIONS PRIVACY NOTICE
Thank you for choosing to be part of our community at NeuroPath BV. We are committed to protecting your personal information and your right to privacy. If you have any questions or concerns about this privacy notice or our practices with regard to your personal information, please contact us at contact@neuropath.life.
NeuroPath BV is committed to complying with all relevant data protection legislation, including EU and UK General Data Protection Regulation (GDPR). NeuroPath BV is the “Data Controller” as defined in GDPR.
Readers of this Notice
In this Notice:
- “We,” “us,” and “our” means NeuroPath, and
- “Third-party” means someone who is not you or us.
In this Notice, “you” means you as an App user who has created an account to use either the Navigator or Insights Apps.
The Navigator and Insights Apps (the “Apps”) can be used by People with Parkinson’s (PwP), their carers and healthcare professionals (HCPs) treating them. The apps facilitate the care of PwP by allowing symptoms to be tracked, respond to questionnaires, schedule medication and other functionality to provide a holistic view on PwP disease and wellbeing status so that the care provided can be targeted and/or improved. The PwP has the option to share their data with their carers and HCPs should they do so. The Apps may be used by HCPs in the context of your ongoing treatment or participation in medical research projects.
Data Collected When Using the Navigator and Insights Apps
Information you give to us
The following information is collected when you have downloaded and created an account:
- Your name
- Your e-mail address
For PwP users the following information can collected if the user wishes:
- Demographic data (date of birth, sex and ethnicity)
- Medical history, including type of Parkinson’s, symptoms etc.
- Current health information
- Responses to questionnaires and assessments
- Information about physical and voice functioning using technology such as tremor and motion capture
- Schedule of medication
We use this data to:
- to register you with our service and maintain your account
- to build your user profile
- to provide you with the Apps functionality; and
- to make notifications to you (reminding you of upcoming medication and treatment).
Information that is automatically collected
The Apps do not have any cookies.
Your IP address is collected to allow you to connect to the services provided by the Apps.
NeuroPath also collects App usage data related to when you log-on, which App functions are used and related information.
Is the data shared?
No, unless a PwP user chooses to share the data with a carer or HCPs.
Where data is shared with HCPs in the context of ongoing treatment or medical research you should contact the relevant HCPs to get further information about how they process and share your data.
Where the data goes, what is the legal basis and how long we will keep it?
All data processed by NeuroPath that has been collected in the UK/EU is kept within the EU.
Similarly, the data collected in the US stays within the USA.
The legal basis for using all the data above is consent.
The data will be retained until you request data deletion via the email account used to access the Apps. Note that the Apps contain a button which allows you to create this email automatically. When the request is received the data will be completely removed and will no longer be accessible to us or to you.
Where data is shared with HCPs in the context of ongoing treatment or medical research you should contact the relevant HCPs to get further information about how long they retain your data.
How we protect your data
We have implemented appropriate technical and organizational security measures designed to protect the security of any personal information we process. We also ensure that third parties providing services to NeuroPath to operate the Apps have appropriate IT and other security measures in place within the contracts we have with them.
Your Rights
You have the following rights:
- The Right to Information – which is provided by this privacy notice, though you may contact us for further information
- The Right of Access – to receive a copy of the information we hold about you.
- The Right to Rectification – to correct any erroneous information
- The Right to Erasure – to request us to erase your information, though you can use the delete data functionality of the Apps as well
- The Right to Restriction of Processing – you may ask us to restrict the data processing in some manner
- The Right to Object – you may ask us to stop the data processing
- The Right to Data Portability – you may request your data in a machine-readable format.However, this right may be restricted
- The Right to Avoid Automated Decision-Making – whilst this right exists in theory, it does not apply in this case as there is not automatic decision-making
You can withdraw consent at any time and use the delete functionality of the Apps.
If you wish to exercise any of these rights, you can contact us at: benoit.tas@neuropath.life or write to us at:
NeuroPath BV
Benoit Tas
La Lanterne, Rue Jean Burgers 2
7850 Enghien
Making a Complaint
If you are dissatisfied with anything in this notice or any response we give you to a rights request or any other matter you may complain to your country’s data protection authority. A list of the EU authorities is maintained here: https://edpb.europa.eu/about-edpb/about-edpb/members_en.
The UK authority can be contacted via: https://ico.org.uk/global/contact-us/contact-us-public/
Information for Users outside of the EU/UK
NeuroPath BV is committed to meeting its privacy obligations to you. All of the above on what information is collected, for which purpose and how the data is shared and retained by NeuroPath is fully applicable to you.
You may also have some or all of the rights mentioned.
If you believe you have a right and you wish to exercise it, then contact at: benoit.tas@neuropath.life or write to us at:
NeuroPath BV
Benoit Tas
La Lanterne, Rue Jean Burgers 2
7850 Enghien
Belgium
If you are using the Apps within the context of ongoing treatment or medical research
NeuroPath BV is only responsible for the processing of your personal information within the boundary of the Apps. If you are using the Apps within the context of ongoing treatment or medical research, then you should contact the people responsible for further information about the legal basis for their processing of your data; the purpose and means of processing; and information regarding data sharing, data retention and data security.
Note, if you wish to exercise your rights within this context you must contact the people responsible.